Connect with our local chapter:
Takes place Saturday, May 22nd at James Island County Park 

Charleston, South Carolina (March 9, 2021) – The South Carolina Affiliate of the Huntington’s Disease Society of America (HDSA) will host the Charleston Team Hope Walk on Saturday, May 22nd at 10:00 AM (EST) at James Island County Park. There will also be a virtual component. All proceeds support HDSA’s mission to improve the lives of people affected by Huntington’s disease (HD) and their families. 

“This is going to be our first in person event of this kind in Charleston,” said Joyce Sireno, Event Coordinator. “We are so excited to be able to bring our families together for a morning of fresh air, exercise, comradery and most importantly connecting with other HD families in our area.  We will share information regarding care and research along with having children’s activities. For those unable to attend in person, we will include them via a virtual component. Come join us for a morning of fun!” 

Team Hope is HDSA’s largest national grassroots fundraising event, which takes place in over 100 cities across the U.S. and has raised more than $14 million for HD since its inception in 2007. Thousands of families, friends, co-workers, neighbors, and communities walk together each year to support HDSA’s mission to improve the lives of people affected by HD and their families.  

For more information about the event, please contact Joyce Sireno (sirenosc@yahoo.com, 803-315-8766). Online registration and donation can be found at hdsa.org/thwcharleston 

HDSA's Team Hope Walk Program is nationally sponsored by Genentech and Teva Pharmaceuticals.  

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Huntington’s disease (HD) is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain. It deteriorates a person’s physical and mental abilities during their prime working years and has no cure. Every child of a parent with HD has a 50/50 chance of inheriting the faulty gene. Today, there are approximately 41,000 symptomatic Americans and more than 200,000 at-risk of inheriting the disease. The symptoms of HD are described as having ALS, Parkinson’s and Alzheimer’s – simultaneously.

The Huntington’s Disease Society of America is the premier nonprofit organization dedicated to improving the lives of everyone affected by HD. From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today and hope for tomorrow for people with HD and their families. HDSA was founded in 1967 by Marjorie Guthrie, the wife of legendary folk singer Woody Guthrie. Woody died from HD complications when he was only 55 years old, but the Guthrie family legacy lives on at HDSA to this day.

To learn more about Huntington’s disease and the work of the Huntington’s Disease Society of America, visit www.hdsa.org or call (800)345-HDSA. 

FOR IMMEDIATE RELEASE

Matthew Santamaria

Communications Coordinator 

(212) 242-1968 ext. 204 

msantamaria@hdsa.org